Exploring the Illness Narratives of Women Diagnosed with Autoimmune Disease

Abstract

Autoimmunity is a medical disorder where the immune system targets itself, causing harm to various organs. Women are more susceptible due to their double X chromosome genes, making them more susceptible to autoimmunity. The immune system may target specific organs, such as skin, bones, kidneys, thyroid, connective tissue, or joint tissues. Autoimmune patients often feel alone, with feelings of rejection, isolation, and loneliness worsening. They may also experience depression, exhaustion, and poor health-related quality of life. The research was carried out in the city of Karachi. The research methodology used in this study was the Narrative method, which included an interview guide as the primary data-gathering approach. The researcher used purposive sampling to capture and record several autoimmune conditions seen among individuals residing in Karachi. The researcher used qualitative research tools for data collection, including interview notes, audio recordings, and transcriptions. Additionally, case studies of the respondents were employed to facilitate effective data collecting and analysis. The researchers used purposive selection to choose a sample of seven respondents who had different autoimmune disorders. This specific sampling method was chosen to facilitate serial interviews, allowing for in-depth data collecting that could be utilized to convey illness narratives. The study reveals uneven healthcare access due to insufficient knowledge, infrastructure differences, and autoimmune diseases prevalence. The internet facilitates health information access and promotes healthier lifestyles among young people. Autoimmune illnesses, require ongoing medical care and can impact fertility and reproductive health. The CSM framework focuses on open discourse, active listening, and collaborative efforts, focusing on women affected by autoimmune illnesses. Religion plays a significant role in providing strength, meaning, community, belonging, and hope for women struggling with autoimmune disorders. Keywords: Autoimmune disorders. CSM- Sensemaking. Research, Susceptible, Autoimmunity